Patients’ perceptions of family engagement in health information practices : influences on the self-management of asthma

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2020
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Borlido-Santos, Júlio
Mendes, Álvaro
Vilar-Correia, Maria Rui
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Zusammenfassung

Background
Involving patients and family members in care is a growing area of research and practice as more family members express the desire to participate as constituents of the patient care team. In this study, we aim to understand patients’ perceptions of family participation in asthma self-management, particularly concerning health information seeking behavior.
Methods
Semistructured interviews with 35 patients with asthma were conducted at the Immunoallergology wards of both a central public hospital and a private hospital in Porto, Portugal. Data were collected through the McGill Illness Narrative Interview. Interviews were thematically analyzed as case-based and process tracing-oriented. Results
Asthma in the family history appeared to be a major determinant of two profiles of patientswith asthma: Group 1 (n = 23/35) patients with asthma who are ‘nonseekers’ of health information and for whom asthma ispart of their family histories and who easily adapt to illness in their daily lives, although they had difficulties controlling theirasthma, given the disease severity; and Group 2 (n =12/35) patients with asthma who are ‘seekers’ and do not have familyhistories of asthma and whose experiences of illness brought limitations to their daily lives, raising questions of bafflement (Why me?) and control (What can be done?).
Conclusions
Asthma patients with family histories tend to be more accepting of their diagnosis but require basic information for daily management. Asthma patients without family histories tend to deny the condition and require more emotional support to cope with it. The family should be considered as integral to the processes of knowledge-sharing and decision-making, and how families experience the disease should be taken into account by health professionals when offering a treatment plan.

Zusammenfassung in einer weiteren Sprache
Fachgebiet (DDC)
300 Sozialwissenschaften, Soziologie
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Information Seeking Behavior, Asthma, Patient Care Team, Self-management, Informal social support, Health networks; patient's experiences, qualitative
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ISO 690DE ABREU, Liliana, Júlio BORLIDO-SANTOS, Álvaro MENDES, Maria Rui VILAR-CORREIA, 2020. Patients’ perceptions of family engagement in health information practices : influences on the self-management of asthma. In: Journal of Communication in Healthcare. Taylor & Francis. 2020, 13(1), pp. 17-26. ISSN 1753-8068. eISSN 1753-8076. Available under: doi: 10.1080/17538068.2020.1742490
BibTex
@article{deAbreu2020Patie-54530,
  year={2020},
  doi={10.1080/17538068.2020.1742490},
  title={Patients’ perceptions of family engagement in health information practices : influences on the self-management of asthma},
  number={1},
  volume={13},
  issn={1753-8068},
  journal={Journal of Communication in Healthcare},
  pages={17--26},
  author={de Abreu, Liliana and Borlido-Santos, Júlio and Mendes, Álvaro and Vilar-Correia, Maria Rui}
}
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