Numeracy of multiple sclerosis patients : A comparison of patients from the PERCEPT study to a German probabilistic sample

Abstract

ObjectiveA shared decision-making approach is suggested for multiple sclerosis (MS) patients. To properly evaluate benefits and risks of different treatment options accordingly, MS patients require sufficient numeracy - the ability to understand quantitative information. It is unknown whether MS affects numeracy. Therefore, we investigated whether patients' numeracy was impaired compared to a probabilistic national sample.MethodsAs part of the larger prospective, observational, multicenter study PERCEPT, we assessed numeracy for a clinical study sample of German MS patients (N = 725) with a standard test and compared them to a German probabilistic sample (N = 1001), controlling for age, sex, and education. Within patients, we assessed whether disease variables (disease duration, disability, annual relapse rate, cognitive impairment) predicted numeracy beyond these demographics.ResultsMS patients showed a comparable level of numeracy as the probabilistic national sample (68.9% vs. 68.5% correct answers, P = 0.831). In both samples, numeracy was higher for men and the highly educated. Disease variables did not predict numeracy beyond demographics within patients, and predictability was generally low.ConclusionThis sample of MS patients understood quantitative information on the same level as the general population.Practice implicationsThere is no reason to withhold quantitative information from MS patients.